Every course has an obstacle

Its been such a long, almost year of a journey...speaking of Journey, who doesn't love the song "Don't Stop Believing"...its such a great song.  It also happens to be the song of our life for the past 2 days.

It's no surprise that when you have a medically dependent child, that you will run into problems. Problems with everything.  But when you do run into a problem, it seems to hit you straight in the heart, when you least expect it.

Our newest problem came from a phone call that I received yesterday, and then another one today.

Cincinnati Children's Clinic - Airway Specialist has been on our radar for quite some time. Back in June, we were finally able to get in contact with them and Brody's case was presented to the board there.  They presented 120 cases that day.  This is the trachea mecca of the world.  If you have an airway issue, this is who you want to go see.  I was so excited when we got the phone call letting us know that the "board" accepted us.  It was such a blessing, and at that moment I felt a rush come over me.  Like, I knew it was all going to be ok, and we were going to find a way to get Brody through this.

Yesterday I got a phone call from the Cincinnati clinic letting us know that Medicaid has denied the visit because it isn't medically necessary by their standards to go see them.  WHAT?? You have got to be kidding me.  I was told to hold tight, because we still had Tri Care to approve it.  Today, I got the phone call that Tri Care also denied it for medical necessity.  D.E.N.I.E.D.... I have never felt so heart broken.  What do you mean NOT MEDICALLY NECESSARY.  He is number 13 in the WORLD  with this.  He is currently only the 3rd person still alive with this issue.  I have the research.  This is necessary!  His life is my life.  I'm heart broken.  I'm back at square one.  Back at the beginning of our Pfight.  I'm sad... period.  It is not NECESSARY?? I'm sorry, but if it was their kid, it would be necessary!!! That's all I have to say about that.  I WILL get B to Cincinnati if its the last thing I do.  How? I'm not sure yet.  But I WILL!!   I have gotten in contact with Dr's for letters so that I can start the appeal process, but if you know anything about insurance, you know its going to be a battle.

But if there is anything that I have learned from Bear in this last year, its to pfight, and not to stop pfighting and having faith!

Hoping that the appeals work.

Right now I'm sad, lost, and confused, but every course has an obstacle.... I will beat this one.

http://www.gofundme.com/58c7p4

Keeping the faith,
-S